"Requesting Prayers"

Please join the Fibrous Dysplasia online list group and foundation, in praying for the needs of these specific prayer requests from members of the FD group and non members around the world, who are also facing illness and pain. People have set aside time to pray for one another in the hopes of finding a cure for those suffering with Fibrous Dysplasia and MAS. We are asking everyone who feels led to pray, to please notify your churches, synagogues, mosques, friends and family in joining with us in prayer. Fibrous Dysplasia is an extremely rare and painful bone disease which eats good bone and turns it into a ground glass textured mush. Children with FD suffer from debilitating multiple bone fractures and deformities. These children grow into adults who because there is no cure, endure lives of severe pain and depression. Together we can make a difference and so this is our hope.

Please join us......

To learn more about FD, click on this link: Fibrous Dysplasia Foundatio

Thank-you

If you would like to copy and paste these requests in any format to spread the word for prayer, please do so. Also if you would like to add to this list, you can email me at our email link to the left and I will be more than happy to add your prayer requests to this list.

And so it begins.....................

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New!

Urgent Prayer Requests

03/12/07

Dear All,

I kindly request your prayers for my wife, Ambhey, who will undergo major surgery a few hours from now at the Philippine General Hospital in Manila. She has a huge tumor in her mandible (jaw) which was pathologically diagnosed as Ossifying Fibroma and the procedure will be to resect the whole tumor and after a few days, bone will be taken from her hips to replace the jawbone.

Please include my wife, Ambhey in your prayers that she may have a successful operation and that she will be able to tolerate any pain she would feel after the operation and that she would recover quickly.

Thank you and I will keep the group posted for developments on her surgery. God bless you all!

Sincerely,

Edmon Mallari

 

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Brandon Is 11 and was Diagnosed with Asymmetrical Septal Hypertrophy. The Muscle has become so enlarged that it is Blocking Blood flow through the valves in his heart, causing dizziness and black outs. He has been put on medication and will now begoing for his first surgery of many. I want to pray for his strength to Understand what is happening to him and his strength to physically and mentally deal with everything that is happening. Also for god to Carry him through these surgeries so he can go on and live a somewhat normal life. Also Pray for my strength to hold myself together and be his rock of Love and support he needs. Thank you Candy

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http://www.gosegubbar.com/huvudsisda_yoda.html

Please click on the link to see a picture of a missing showdog from Sweden. His owners are asking anyone who knows anyone in her area to spread the word and keep all eyes open to hopefully find Yoda ASAP. Thank-you.....permission to crosspost:-) Lesley


MISSING DOG

YODA - "JÅDA"

Small male dog- 2,5 kg

Disappeared Friday 9 feb around 15.15 o'clock

We then were at

kalltorps by outside sjuntorp.
He got frightened, went away and have since then not been seen or heard.

We welcome all tips that can bring him home again.

Have you seen him pass by, have you brought him inside, do you know anybody who has taken him, if you have any information that can help..Don't hesitate.

Call Möller family at Tel. 0520 – 44 03 29 or 0520 – 47 55 66. Or 0520 44 06 25 or phone the police. // Nina Möller.
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1/12/07--I just recieved a email from my step mom she has told me that my dad Larry was
diagnosed with rectal,colon cancer today.I am asking PLEASE say some
prayers for my dad.Thank you, Gail

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Prayers below were asked on 12-31-06--please scroll down as some have been answered! We will post answers to prayer as they come in.

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Thank you so much for making the specific prayer request list! I think the day of prayer is a wonderful idea! My church here in Warsaw, IN will be participating. I can’t reply to the whole group due to the way we have our e-mail set up, but we are participating.

My son, Max, has cranial facial FD and we recently found out that he also has MAS. There is a 7mm “growth” on his pituitary gland causing him to have extra growth hormone. I’m not sure if you were at the conference in CA this fast fall, but with what Dr. Collins presented, this is very troubling to us. My specific prayer request is that this growth would shrink or go away and that we never have to treat the extra growth hormone.

Our prayers go out to everyone in this group!!! I’m so thankful for this group because it brought me together w/ another mom who only lives 45 minutes away whose son also has cranial facial FD. We’ve been able to support each other like no one else can!

Thank you again!!!

Best,

Jen Coleman

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Hi group,

I have had the results back from my bladder surgery and they are not good. I guess I have invasive bladder cancer. I would appreciate your prayers. I go to the UW med center on Jan 9 to find out what is next.

Take care,
Vivien

UPDATE!!!! 1-13-07

I just thought you might like an update on the bladder cancer which I have been diagnosed with. The results my trip to see the specialist at UW are pretty positive. The dr. there did not think it was serious enought to have radical surgery (removing bladder, uterus, and other parts) and is going to go in and make sure all of the cancer was removed the first time and will probably have me start chemo or radio therapy.

Your prayers have helped me and my family greatly and I want to thank you all for your support. I am not out of the woods, but the path is a lot clearer now.

Vivien

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Leslie, please add me to the prayer list. I have so
much stress right now that FD and daily pain are WAY
down the list! My heart is so broken and I feel like
there is no light at the end of the tunnel! PLEASE
pray for me. That God will give me direction and open
doors to lead me. Thank you, Desiree

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Dear Lesley,
I ask that you include a prayer for my 13-year-old grandson, William Ross, in Central Virginia. He has been relatively fortunate in that, so far as we know, he only has the monostotic form of FD, in his left proximal femur. He has had two pathological fractures with no more since the second one five years ago. He does limp due to a limb-length discrepancy and a bit of Shephard's Crook. Thankfully he suffers little pain although this is increasing somewhat; I think because he's undergoing a growth spurt.
I pray also for his spiritual and psychological welfare as he has been increasingly mentally manipulated the past couple years by his problem-ridden father; and in May was finally removed from his custody and put into foster care by Social Services after a nasty beating. My daughter is trying to regain custody but the legal process is very slow; she is agonized by all this but hopeful.
Excuse my going on beyond the physical problems but perhaps you'll understand the holistic connection. I commend you for your inspirational impetus to us. I will be asking for prayers for all from my small but wonderful congregation at St. Patrick's Episcopal Church in Falls Church, Va.
Finally, I commend you (and the others who've chimed in) for your inspirational impetus. With gratitude, Victoria Kennedy

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Carolyn Mooney
End stage COPD

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Hello Every one.

I wanted to wish everyone round the world a Merry Christmas, Happy Holiday season and Happy New year.

As all of you are praying, could I please be put on the list.

On the 4Th of January I go for another operation, this time to remove my last ovary now about the size of a grapefruit and a lump in my breast that has gone from the size of a dime to the size of a golf ball in the past month. These Masses do not seem to be part of FD but all the same I could really use some help as this is my 3rd operation in less than a year to try to correct the problems.
My family and I would greatly appreciate any blessings or prayers.

Sincerely Mrs. Michelle (Little Ray) Inks and Family
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I request prayer for Right Breast calcifications and a clean biopsy. Also pain relief and healing and a CURE for Fibrous Dysplasia. Prayers against depression from pain. Financial and spiritual prosperity for our family in this 2007 New Year and every year thereafter. Energy and weight loss to ease the pain on my lower back and weight bearing bones...a healthy body, mind and spirit. More clarity of thought and organization. Health for our Children and our dogs, and success in everything they do, in every way. Let Gods word spoken over our family in 1993 be completed and brought to fruition in 2007. Let my life be a testimony to others who are hurting and who need hope. Be with all those that the Lord has brought to me who need help for pain, illness, and depression that I can pray for them and they find healing and learn to know your voice. Use me as an instrument of your Peace Lord, and glorify yourself through me, that I can help be your arm when you reach for your children and show your compassion and love as you have done with me. That others would know you as I have known you...Blessings to all and Blessings for our Country and our soldiers and their family's in Iraq and Afganistan and throughout the world . Thank you Father, you are such an awesome God, we are so Blessed....

Lesley Harger

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Brent Harger, healing for Osteoporosis

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Wesley Peck continued healing for injurys sustained in fighting in Iraq.

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Prayers for a CURE for Fibrous Dysplasia, that no more children will live lives of pain and suffering because of it.

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Please pray for Elizabeth and her nurse Cynthia...and a cure for FD and the pain that it has caused Elizabeth.

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Well done Lesley, the severe daily pain is draining leaving us feeling worthless, more than that, a burden, and the depression is a constant battle. I pray for a miracle: that God will take away all our pain, free us from this painful disease, and restore two-fold everything we've lost because of this disease [restore & strengthen our faith, heal all the emotional wounds we've caused or incurred, reunite families, restore our finances, etc.... Thank you for your time and effort Lesley and may God bless all those who have taken the time to pray for us strangers.
Beth

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I would like to ask for prayers for my Dad who is suffering from lung cancer. I'm his caregiver as my Mom passed away in January from lung cancer too.

The stress of our lives has made my FD so much worse. I hurt in places now that never gave me trouble before. Stress isn't good for anyone, but I think especially for those of us with FD.

I love to read what you write about God and hope. Thank you again. I will be praying for everyone tomorrow and I know that He will hear our prayers.

Hugs,
Terrie

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Asking for prayers of healing for Mary Mytych and giving thanks for prayers answered!

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hi Leslie,

Thank you. I was extremely moved by your prayer site. If it is not too late.....Prayers and peace to our loved ones and caregivers who feel such helplessness when we are in pain. Bless them forever, my lord, for their steadfast endurance and love. Renee Caubisens

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Hi leslie

I would like to ask that you add a prayer for my family on your prayer list.

I have Fd on the left side and have to make several long trips a year to a specialist hospital. This year we lost my beautiful younger brother 7 years after he suffered a head injury, it was the worst thing that could have ever happened but still my family have been by my side particularly my darling mother who attends every hospital appointment with me despite her grief.

Please pray for my mum, my family and for Gareth who we know watches over us every day.

thanks for everything your doing.

may God be with you

all my love

Andrea

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Please remember me in prayer. I am a 58 year old lady that has been fighting fd since I was 2. I also have fibromyalgia. Thank you for your thoughtfulness in having this day of prayer. I couldnt make it without prayer.
Shirley Culpepper
From Mississippi

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"Broken Bridges"

Toby Keith & Lindsey Hahn

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